A DEVASTATED mother who found out her two-year-old has a terminal illness has launched a fundraising drive to give her beloved son a “comfortable and fulfilled life”.

Leesa and Allan Lynch were told the heartbreaking news in June. Their son, Ellis, had Duchenne Muscular Dystrophy, a muscle wasting disease.

The couple have now set up the Ellis Lynch Forget Me Knot Foundation to raise money to buy the equipment their son is going to need in later life like wheelchairs, hoists and walking frames and to try and take him to Disneyland.

Mrs Lynch, 36, said: “When Ellis got to two and he was just bottom shuffling, I thought there was something wrong. It was only after we went to a few doctors he was diagnosed with the disease.

“The condition is a devastating disease and is terminal in boys. From the age of ten he will be in a wheelchair.

At the moment he gets around with a frame.”

Duchenne Muscular Dystrophy is more common in boys and symptoms usually appear before the age of five. Early symptoms include difficulty in standing, low endurance and the inability to climb staircases.

Mrs Lynch added: “I can’t explain how I feel about the whole thing, I am just numb.

“I don’t feel like it’s my son I am talking about.

“The time Ellis has got is precious. His has a rapid, fast acting form of the condition and there is no cure.

“This is why we set up the foundation, by holding charity events, we will use the money raised to take Ellis on holiday and not let him miss out on anything. And anything that is left we will donate it to a bigger charity.”

Ellis is having physiotherapy at the moment to help him try and walk with a frame, but there is no guarantee it will work, explained Mrs Lynch.

The family, of London Road, Tilbury, are holding a charity disco at Tyrells Hall, in Dock Road, Little Thurrock, on November 19, from 7.30pm till 11pm.

To attend or donate to the fund, call Mrs Lynch on 07749 028837 or e-mail leesaellis@aol.com